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I am a former research scientist, now temporarily of independent means, fighting oesophageal cancer and learning to support myself without a salary.

…and relax

I’ve been pretty tense for the last few weeks. What with dealing with the anniversary of Christopher’s death, and working flat out on a major bid at work, things have been rather stressful at both home and work. Mind you, I don’t mean to complain about having to work hard – it’s been very good [...]

The Big Chill

The Big Chill Festival is on again in the grounds of Eastnor Castle, just down the road from me. Last year, the disruption it caused to us locals was massive. On the Thursday night, I had needed to get home from the hospice, and the friend who gave me a lift got caught in the [...]

Preliminary scan results – Bad news.

By Gillian from the hospice I spoke to one of the doctors here this morning. The scan report is not ready yet. But following yesterday’s rough day they have taken a sneak preview at the raw scan. The preliminary diagnosis is a secondary brain tumour at the back of the skull. That would explain the [...]

Update from hospice day 7

By Gillian (using Christopher’s iPad at the hospice) I have been here all day and it has been quite a gruelling day altogether. There has been a step-change for the worse I’m afraid. He had a fit this morning – very like the one in January and again on the train, and collapsed on the [...]

Visiting the consultants

Yesterday I saw the palliative care consultant, and was scheduled to see the oncology consultant. I spent a long time with the palliative care consultant, and by the end of the meeting it really wasn’t necessary to see the oncology consultant, as we had covered all my signs and symptoms in the first meeting. The [...]

Post chemo week 8 status

What a week! I feel as though I have been vomiting all week, although I managed to avoid it on Friday morning, I have sacrificed my morning cup of tea every other day since Monday. I vomited twice this morning for good measure. It was so bad that I phoned the palliative care nurse to [...]

The sacrificial cup of tea

While I was receiving chemotherapy I found myself throwing up almost every morning. I learned not to take all my pills first thing, as I would inevitably lose them, or some part of them, but wouldn’t know how many or even whether I could take replacement pills. But at least the vomiting did stop me [...]

Post chemo week 7 status

The big event of the week for me was the radiotherapy to my back, while Gillian has been trying to keep her workload at a more sustainable level. Gillian’s manic period at work reached a peak on Wednesday this week, but fortunately she was still able to accompany me to Cheltenham where I had my [...]

Post chemo week 6 update

The past week seems to have been dominated by back-care and food, sometimes with friends. On Tuesday, despite a slightly dodgy start, I had a great time meeting friends in Ludlow, although my back paid for the fun during the whole of that evening. But it was definitely worth it. I’ve found it harder and [...]

Mixed day

Hmm. What an odd day! I started this morning knowing I would be going out just before lunch to meet some friends, but I knew I would have plenty of time to start the day normally. I had just finished breakfast, and said goodbye to Gillian as she went to work, when I started feeling [...]