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Up and down – mostly down

By Gillian

Yesterday was, by current standards at least, a goodish day. Today is less good. Chris is in no pain, but he seems very confused. The nurses and I have to speak very slowly and clearly to him, or he can’t understand us. He is also having major difficulty talking. We are waiting for a visit from the consultant oncologist to decide what, if any, treatment is appropriate for the brain tumour. In the meantime I am taking comfort from the odd lucid five minutes, in between dozes. However, this is clearly the beginning of the end. The only major question is how long it will all take. Several weeks is the current best guess.

{ 10 } Comments

  1. Sam Carrington | 4 August 2010 at 1:49 pm | Permalink

    Both, I am sorry to read your latest post. There really aren’t any words, but please know that you are both in our thoughts and know we are here to help and support as much or as little as you would like. Sam x

  2. Rebecca | 4 August 2010 at 1:55 pm | Permalink

    I can only say that I am glad to hear that you both continue to receive such good support from the hospice / medical staff. There are many more of us out here hoping to get across our moral support in whatever way we can.

  3. Richard P | 4 August 2010 at 2:11 pm | Permalink

    Dear Gillian,
    It was so good to be able to spend some time with you both this morning. I hope we’ll all have the strength to cherish these moments over the coming weeks.
    Best wishes to you both,

  4. James K | 4 August 2010 at 3:21 pm | Permalink

    Thinking of you both.

  5. Mantina | 4 August 2010 at 4:35 pm | Permalink

    Reading your last post brought tears to my eyes
    I’m so sorry to hear this
    We are al hear to support you – remember support can come from anywhere so please I’m here if you need anything

  6. Frosty | 4 August 2010 at 4:38 pm | Permalink

    I don’t know what to say other than to echo Rebecca’s comments. We’re thinking of you both x

  7. Elly Smith | 4 August 2010 at 4:43 pm | Permalink

    Dear Chris and Gillian, I am so sorry to read your last post – I really don’t know what to say to you both except that we all send you much love and you are very much in our thoughts. Elly x

  8. Chloe Ashley | 4 August 2010 at 5:05 pm | Permalink

    Dear Chris & Gillian,

    I am so sorry to read your post, Mum and I are thinking of you both and want you to know that if we can do anything at all please do not hesitate to ask.

    I am pleased to hear that you are receiving excellent medical assistance, please pass on my regards to my favourite Waitrose customer.

    Chloe x

  9. russiandoll | 4 August 2010 at 7:29 pm | Permalink

    My heart goes out to you, Gillian. My love to you both; courage and strength to those close to you. I’m glad that Chris has not been in pain today. Thank you for your updates.

  10. Tim Hope | 6 August 2010 at 2:21 pm | Permalink


    You and I have never met, though I met Chris a few years ago through photography- You and Chris are in my thoughts daily.

    Best wishes,